Saturday, January 31, 2009
Saturday Update
He is soooo skinny! We would always say before how thin he was and never gained lbs...he was overweight then compared to know.
His stamina is as expected still low, therapies are scheduled out off and on through out the day, still having nausea off and on, extremely light headed if he tries to sit up or move himself up to fast. Still having to be catherized every 4 hours, and things stand the same on little muscle control/feeling from the mid chest down. He has all bandages off his trach area...it looked GREAT! He really does like it at TIRR, and as of now has a "good ol boy, biker" roommate.
We are still encouraging visitors as much as possible. Even if dad is in therapy, it is great for him to know that you are there, and great for mom to have the company. On Sat they do half the therapy and on Sunday there is no therapy at all. From what I can kinda tell, during the week therapies seem to end around 4. Mom has been getting up there around 11am.
A couple of friends took mom out for a "girls night" last Wed evening (dinner, hang out time) and that was such a blessing to her! She needs that type of thing to feel human, normal, rejuvenated, etc. So basically we are doing a call out for "come one, come all" to anyone that could have a "time out" with mom. Mom has thankfully been real good about saying when is a good time or not (as best as she can) on when she can leave dad. I know that we are asking a lot from friends and family with the juggle of visiting dad and also spending time with mom....but this seems to be so important. We as her kids can only do so much, and honestly having other people outside of us kids for her to talk and hang out with is what she needs.
Thanks again for all the prayers. They are hoping to find something out about the MRI at the first part of next week. We are praying that God directs the doctors on what needs to happen with dad as a result of the MRI. They LOVE his Dr. there!! Praise God!
God Bless!
Thursday, January 29, 2009
New Room / Number
Apparently he was quite nauseous today, so the OT people put him in a wheelchair and took him outside. Of course, this was the first time he's been outdoors in 11 1/2 weeks, so he LOVED it! The OT folks left him, and when he and Mom got back to the room, Mom realized there was no one there to help him back into bed.
Mom left to get someone, and couldn't find anyone. When she got back, he was in the bed and was heaving his legs into position on the bed! He had used the techniques that OT has been showing him for wheelchair stuff. Mom went and told the doctor, she was so proud...and the doctor was impressed--but said, "OK, but we don't really WANT him doing that right now, especially unsupervised." But, the doctor wasn't mad, just wanting him to be safe.
Thursday
Dad's doing several hours of PT, OT, and wheelchair time every day. Tuesday he was in his wheelchair almost ALL day, although Wednesday not too much.
Ultimately, he will not likely get to stay at TIRR for very long due to Medicare issues...but we are praying that the Lord will have him get the care he needs at the places he needs it, when he needs it. Nothing is too complicated for Him...even though we are sometimes overwhelmed with the complications. Keep praying for Mom's health, strength, and peace...as she is dealing not just with Dad, but her normal health issues and also her mother's health (which is NOT good currently).
Monday, January 26, 2009
10 Weeks! Prayer NEEDED
Also, M. and Mom told Dad the entire story of what happened the day he went into the hospital. The losing pulse 7 times over a 2.5 hour period, being dead for 10 minutes, etc. etc. He took it very well, and we just told him that no matter what happens, we are praising God that he is still alive and with us...and that God obviously has something more in store for him. He agreed.
Today, we got some concerning news. The doctors and therapists at TIRR said that they think there is a strong possibility that Dad has spinal cord damage due to neurological damage from the lack of oxygen to the brain for 10 minutes. They think this may be why he has not been improving much on moving his legs, and has no control of his sphincter (and some bladder issues too). Therefore, they are going to schedule him for an MRI of his spinal cord...but they have to do it at another hospital since they do not have MRI's at TIRR.
Also, a doctor saw the sore on the back of Dad's head that has been there for probably 8-9 weeks, and said, "That doesn't look good at all." Mom said, "YES!!! FINALLY someone is going to look at it!" The doctor said she may get a dermatologist to come and look at it, and possibly do some tests. For those who don't know, they've been saying "this is just a bed sore"...but it has made the top part of his head tingly-numb, and hasn't gotten any better.
While we know everyone has been diligently praying for Dad over these last 2.5 months, we are asking for additional prayers on his spinal/neurological issue, and the sore on his head. We pray that the Lord continue to strengthen him, that rehab would increase his muscle control, and that any issues that are needing to be addressed are found quickly. Lastly, we're not sure how long Medicare is going to let him stay in TIRR, as we've been told it may only be about 18 more days. Please be praying he gets to stay wherever it is he needs to be, for as long as needed!
Saturday, January 24, 2009
A busy weekend...
We also got the office moved today...Thank You sooo very much to the ones that helped, it was truly a blessing!! Thankfully we had enough help that we were able to get it all in one trip and it all fit the way we had imagined upstairs at my parents house.
A lot of good stuff has happened this weekend, and we are all exhausted! Praise God though!
Please keep up the prayers for dad's recovery and the care he will be receiving at TIRR. Also please keep in your prayers that he is able to stay there as long as he needs to (there is a fast turn around rate) and he is able to make progress without any set backs. Thank you so much! God Bless!!!
Friday, January 23, 2009
Dad is moving around 3 today
Thanks for the prayers with this transition.
Dad is Moving...
Also they took out dad's urinary cathater and things seem to be going well.
When we know more about the move we will let you guys know.
Please pray that this transition is a smooth one and all goes well, etc.
God Bless!
Thursday, January 22, 2009
Finally an Update...
Here is just a short update of the little I know:
- Dad has been feeling better with his nasea and when I talked to him yesterday evening he said he hadn't had any that day...first day in about 5 or 6.
- They put him in a wheelchair and let him use his arms to stroll around the halls. He really enjoyed that, gave him a sense of mobility and independence he hasn't had in a long time. It seemed to wear him out but in a good way.
- I do not know how his blood cultures have come out, I will try to find that out today.
- Mom is still in the process of figuring out where dad should go next. He is suppose to move to a "Skilled Nursing Facility". Thanks big time to Cherie for helping mom out with most of this.
We are trying to sell 3 of dad's big filing cabinets (4 drawer, 36" wide) if you happen to know of anyone or a business that may be interest, please let someone in the family know. We really don't want to have to move those home, mom doesn't have the room.
Please continue praying for the family, we are all wore out with the events of moving the office, finding a new place for dad, MeeMaw (mom's mom) they are saying she needs surgery on her back...or live her life on strong pain meds, and of course just everything going on with dad himself and his recovery.
I'm so sorry this email doesn't have more detail but I have been sleeping, eating and breathing the office all week.
God Bless!
Monday, January 19, 2009
Update on Dad
Also they told mom yesterday that he has to be moved...he has been there long enough for insurance, etc to say he has to move. Please pray as mom is now having to find another place. The case worker said for her to look for a "skilled nursing facility" instead of just a rehab facility with him still not doing very well.
Thanks for all the prayers!!!
Friday, January 16, 2009
What a Difference a Day Makes!
Also, they took out his tracheotomy today! YEA!!! There is just a dressing over the stoma now, and they are going to let it heal up.
Dad' stomach is still very distended, but he said it's not hurting. Some of that is from the C. Diff and the lack of protein in his system. Also, something we haven't been mentioning is that Dad's left leg is quite swollen and has been for weeks. This is the leg with the blood clot, but his right leg is swollen too, just not nearly as much as the left. Please be praying that his kidneys continue to heal and pull-off the fluid like they need to, as well as he get all his protein and other blood-work vitals to where they need to be.
Thursday, January 15, 2009
Thurs addtion...for the addicts
A very sweet, long-time friend, volunteered to sit with Dad today while Mom was taking care of HER mom. While Dad is doing well, the reality is that he gets better attention and care from the hospital when people are with him (and Mom is less stressed about him while she's away). The hospital workers know they're being watched, and that detailed reports are being relayed to Mom. Heh, heh. So we've appreciated everyone who has assisted in this time-consuming way. So many have blessed us these last 8+ weeks, it's very humbling.
Dad did very good today, ate most of his meals, and was quite busy with therapy. He stood up in the torture device for about 4 minutes, then 2 minutes, then again for about 3 minutes. He didn't seem impressed, but I told him that only two days ago he had only lasted a total of 4 minutes...today was 9. That's more than double! They also had him in the therapy chair for a couple hours. I wonder why they decided to do that all of a sudden (see previous post).
Nurse said they'll only be taking blood analysis about once or twice a week, so won't know what his protein levels are until the next go-round (whenever that will be). Continue to pray for his recovery, strength, bowel and urinary control, and for Mom's health too.
Wednesday, January 14, 2009
M's additions...Mon thru Wed
On Tuesday, Dad stood up in the medieval torture device (not really, but looks like one) for about 3 minutes. Today, he stood up about 4 minutes, sat down a few minutes, then stood up for another 2 minutes. I did question a nurse as to why they've never sat him up in the special therapy chairs like they did at Methodist (for hours at a time, no less).
With all the good news, PLEASE KEEP PRAYING, as Dad is still very sick. My guess he has lost 40 pounds...and he didn't have much to lose in the first place. He needs lots of healing, and certainly the protein levels need to go up.
Tuesday, January 13, 2009
Praise God!!!
- So far all three of the infections he had last week are coming up negative with the new cultures!!
- Doctor also said that a person's protien level should be around 3.something...well dad's was at 1.5 not typical at all for the stuff he likes to eat. The doctor said though that this can happen when someone has diahrea like he has for a couple of months now.
- Dad's diahrea is also doing better. Instead of multiple times an hour, it is now every few hours and getting a better consistancy. (I know to much information, but I don't know how else to word it right now).
- The doctor also said that he believes the swelling is from the lack of protien and as soon as that gets under control then the swelling will also.
- Dad's white blood cell count was obviously high with all the recent set backs. It was at 31 now it is at 17. It needs to be lower, but we are encouraged that it has dropped that much already.
- Mom said that dad looked better this afternoon then he has in the last week.
As you can imgine we are all extremely excited with the good news, and the answer to prayers! Praise God!!!!! Thank you!!!!!!
Monday/Tuesday Update
- He is having swelling/bloating and the doctors are trying to find out why. They took some more blood samples yesterday to see if anything comes up. They also took him off the liquid drip. Also did an X-Ray of his stomach and it came back normal. Swelling start with this stomach, yesterday his knees, and not sure if anywhere else today. I do know that it hasn't gone down any.
- He is still able to eat and drink some and that overall seems to be doing better and better.
- Doctors said that staph at this point is almost gone.
- Doctors also said that the remission/recovery from the C-Diff is making great progress.
- Dad said today that he was able to do some occupational therapy.
Please keep in your prayers the samples they took yesterday, the swelling, dad's overall strength, recovery from infections, etc. He is still feeling very sick and not at all feeling good/normal, but he is recovering from everything he went through at this time last week.
Thank you a million times over for all the prayers and support!!! God Bless!
Sunday, January 11, 2009
Sunday Update
He is talking more and will talk on the phone and is back to visiting some. Mom could really really use the visits especially. She is facing the reality that life is going to be very different now in all aspects of it and it is hard to swallow. She is being very strong through this whole thing and being nothing but strong in front of dad, but give her a hug long enough outside of the room and you will see some of how hard this really is. I know she would love to see a friendly face at any time. If you want to call and make sure she is there, feel free, or you can just show up. Guaranteed that dad will be there. ;-)
Please continue the prayers listed previous and also that if something is wrong with his stomach that the doctors will figure it out. God Bless!
Saturday, January 10, 2009
Friday / Saturday morning
Dad felt much better Friday, and was able to eat most of his meals. His fever was only 99.1 or so, when he had it. He sounded better than he had for the last 4-5 days. I just called him this morning (Saturday), and he sounded WAY better...even than Friday. He said he didn't think he'd be nauseous today at all.
Infectious Diseases doctor said the problem with his infections are that the antibiotics he needs to treat his urinary and staph infections, kills the "good" bacteria that is needed to fight the C. Diff. So, they're going to do the shortest possible run of antibiotics for those, then focus on the C. Diff. Dad's stomach was more distended Friday, but wasn't hurting.
As for contagions...the C. Diff. and Staph are contact-borne diseases. If you visit Dad, make sure you clean your hands first, wear gloves if you want to touch him or adjust the sheets, etc., and then make sure to wash your hands with the soap in the bathroom in the room afterward.
DAD'S PRAYER REQUESTS: Dad specifically asked on Friday night that people pray for healing from the staph and C. Diff, but also that he would gain control over his bowels and urinary tract (has not had control since hospitalization). It's frustrating for him to have to be cleaned every hour or so, and it usually takes a long time before they get to him...don't want bed sores and other complications from not being cleaned-up fast enough. Plus, the urinary infection is likely from having the catheter in.
Thursday, January 8, 2009
Final Thursday Update from Doctors
- He does NOT have a parasite, although
- He does have a staph infection (there was a miscommunication with the parasite and it ended up being staph) or sometimes they are calling it a blood infection.
- He has a urinary infection
- He has a resistant form of C-DIFF. The doctor said they just came out with a new medication to treat the resistant form that has gotten good results. Doctor said that it will still take about 3-4 days before we notice a difference.
Needless to say he is very very sick right now and at times this afternoon was just in bed moaning. He still only has mobility with his arms and now that he is so sick it's delaying good rehab of his legs. He is not up to visitors right now and now won't talk on the phone either. Although, if you want to call and talk to mom you can try.
Mom is going to ask the doctor in the morning where we stand with things being contagious. From what we know so far the C-Diff is not air born and of course the UTI isn't, but we aren't sure about the staph. My understanding is that most staph are contagious. Mom is going to ask when we are in the clear for visitors because I know that mom could use the support, but we don't want anyone getting sick either. Thankfully a very good family friend that use to live across the street from us when I was growing up (she now lives in Louisiana) is in town until Sunday. Praise God for this timing because mom really really needs it!!!
Please pray for full recovery, dad's strength mentally, physically and spiritually to fight through all this, and the strength and well being of mom.
If you haven't read the comment by Cherie on the previous post, feel free, it has some info also.
God Bless!!!!
Added Information to Blog Below
Additionally, the doctor did additional blood testing and he came out positive for a Parasite. His doctor said that he was going to meet with an infectious disease doctor and come into dad's room any minute now to talk with them.
Please add to your prayers the parasite.
Dad is Having a Hard Time
Two doctors are going to check into maybe sending him back to Methodist today. Please Please pray for dad's health and determination to eat and drink to break the cycle and for the wisdom of the doctors and mom on if he should be moved.
Thank you so much for this immediate prayer request. I will post again as soon as we hear something from the doctors on the decision.
Wednesday, January 7, 2009
Hard Morning for Dad
Please keep up the prayers. He is exhausted and tired of being sick and feeling so horrible. He is rebuking the infection and praying for some relief himself as he is laying there in bed. I told him that we had an army out there praying for him and his recovery.
Thank you!
Tuesday, January 6, 2009
A Small Bit of Good News
Thank you so much again for all the prayers. Please continue to pray that he is able to get rid of the infection quickly and start to feel better.
Update
They said that it could take a couple of weeks before he will really start to feel better with his intestinal bacterial infection (C-DIFF), but signs of having this are: nausea, loss of appetite, diarrhea, weight loss, and some others. I am hopeful that once the medicine can start working, then we will start to see improvements in these areas and then we can see more signs of improvements over all.
Please pray that the meds will start to work asap and dad will start to notice a difference with feeling better. The infection is bacterial.
Tuesday: added prayers needed
When dad was in Methodist their personal internest would come every few days and see dad and talk to us about everything that was going on, sumerize it, and put it in normal peoples terms. We have called on her to come and do this again and see if he needs to be placed in a hospital room at Methodist (not neccessarily back into ICU, just back with closer care). Please pray that God gives direction on what would be best for dad.
Thanks so much!
About Monday
I talked to mom last night and she said that overall the day went better. Dad seemed a little stronger (although overall still not feeling good), the nurses were much better, and his main doctor was more attentive. Praise God!! Now if we can just keep this kind of care going.
Only issue I heard about was around mid-day dad's heart rate was up to 130 and they were having to give him medicine to bring it back down. Which my understanding was that he was on strict meds to keep his heart rate regular, so not sure why he didn't have the medicine already. Something else to check into.
Mom had a check up apointment with one of her doctors yesterday morning and come to find out her doctor went to college with my dad's doctor at Kindred. Long story short, my mom's doctor ended up calling my dad's doctor while my mom was in his office and talked to him about the connection they had with the family.
I talked to dad yesterday and he seems real discouraged at how long it is taking him to get his strength back. I was able to talk to him about how far he has come especially with his upper body strength, the baby steps he has made with his legs and just encourage him overall. He knows there are going to be tons of baby steps along the way that will all come together in the end, although when he is living it every night and day and doesn't remember most of the first month it's hard for him not to get discouraged. (as expected)
Please keep up all the prayers for dad, mom the family and everyone else involved. We are praying for another good day today. In addition, mom has another doctor's apointment with MeeMaw this afternoon, please pray for the doctor's wisdom.
God Bless!
Sunday, January 4, 2009
A Hard Sunday
So that was the morning....and of course it just gets better.
Apparently the nurse he ended up having overdosed him on his anti-nausia shots and gave him two along with some other medicine (not sure what the other one was). Mom had to call again the supervisor as dad was turning all kinds of flush colors and feeling very sick. She was told his dr. was in the building making rounds, which of course it took him a good while to come to dad's room. Dad took most of the day to recover from it, they didn't do anything, just let it work itself out of his body. This was all around lunch time.
It was also either lunch or dinner that dad choked on some food while eating with his trake. Mom said it was very scarry.
Although dad looks better, he still feels horrible! He has come a long way over the last 7 weeks, that's for sure but his body is still very sick. He still feels very bad and the doctor has given us a name for what he has, although I have researched this, mom does not know the details yet, so when she is informed then we will let everyone know. He is very week, has muscle atrophy and just over all feels crappy...and cant get better. Overall...all of the time his body still feels very week and sick.
Having said that...having visitors for a short amount of time has been good for him because it is a small amount of the day to get his mind distracted...it also helps mom tremendously! He is still in room 410 and if you call Kindred's Number at 713-790-0500 as soon as the lady starts to talk you can press 5410 and it rings in his room. If you go to visit there is free parking underneath the building and you just have to tell them dad's name and room number and they will let you in.
Today was a hard day for mom and dad...harder then usual, obviously. Please continue prayer for his health and for doctors to figure out a way to get him feeling better. Also please pray for the favor of the nurses and for the nurse to be caring, faithful to respond to the needs and gentle. If you can also pray for wisdom of all the doctors and that everyone working for/with dad at the hospital to be blessed in their lives also.
Thank you all again for all the prayers and support. Please keep my brother and his family in your prayers as a cold his making the rounds. Please additionally keep my brother in your prayers and he has taken over many of the "jobs" that dad had to take care of mom. ''
Oh yeah...Mom's cell phone isn't working right now so you can't reach her this way.
Friday, January 2, 2009
January 2nd, Overall Update
- They had to put dad's urinary catheter back in.
- He isn't eating or drinking very much because he is still nausiated so much. The doctor ordered for him to get a shot for the nausea 30 minutes before he eats, hoping that will help. We don't have faith that the nurse will remember for breakfast, we will see. Mom will be there for lunch and dinner. When he isn't nausiated he has been eating and drinking well.
- Mom had to call the supervisor again today. Apparently the lady came right down to solve the situation and was a Christian and prayed with mom and dad before she left.
- Dad did the stand up device again with full assistance...he was able to do this for three and a half minutes.
That is about it from our conversation.....hope everyone is having a good start to 2009. Thank you all again for the prayers and support! God Bless!!!!
Thursday, January 1, 2009
A Good Start to 2009
Mom asked that people please pray for him bowels and urination that they would regulate themselves now that the catheters are removed.
He was able to left his knees off the bed today also. He was able to do it a couple of inches and enough to see it under the covers. He was SO excited and enthusiastically talking about how it was something new today for him to be able to do.
Mom and Dad is up for visitors and it is just as much of a support for them now as it was before. Exciting part now is that people can actually see and talk to dad, and when he doses off it gives you a chance to talk to mom. Thanks for all the prayers and support!